On July 2 I had to have surgery on my left foot, as something was growing out of the side of it. As my GP told me that it was a tumor, although for the appearance of it benign, I decided to pay a visit to my oncologist, just to get an informed diagnosis. My oncologist called a dermatologist and both came to the conclusion that it most definitely was benign. As it was at the inner outside of the foot, it was beginning to hinder my walking abilities, already not the best part of my motor capacities. So to surgery it went.
And from there on it went wrong, seriously wrong. I was told I should not stand or walk on that foot for at least two day. And I was sent off, on foot. So by the time I arrived at the reception desk 5 floors down there was a whole blood trail running through the building. I was given new bandaging and this time someone went to find a wheelchair. I was told the bandages could be taken off after 2 days. Fortunately I kept the information of the wound nurse that helped my to get through the open leg ordeal, 2,5 years ago. She came and started to take away the bandages. Her first words were “That could have been done nicer”. Nobody was really surprised when the next day the threads tore and left a quite big open wound. I will save you the panicking discussion with the surgeon who had the impression he had seen something malign on the removed tissue, so suggested to take away a larger piece of the foot and cover it with some skin transplant. It was the surgeon’s proposal, although it was decided that my oncologist would take the lead if necessary. The surgeon’s call came on Friday midday so I didn’t talk to my oncologist till Monday. He completely annulled the surgeon’s decisions.
It took weeks to find out that when left alone, the healing speed of the wound could easily be beaten by the slowest kind of snail. So the nurse suggested to use a new kind of bandage Promogran Prisma. And lo and behold, it seems to work.
However, since we started the Promogran, my neuropathy worsened. The open wound on top of my neuropathy was already hell, but that diminished considerably after a couple of days. However, after applying the new bandage, my foot started hurting much more, but above all, my chemo brain came back in full force. When I get out of bed I stumble, having to catch myself not to fall. After 5 minutes that acute problem disappears (balancing problems remain however), but then the next one appears. My eyes start to spontaneously turn direction nose bridge, as if I were squinting. Which makes concentrating a very complicated business. Combined with the physical balance problems, it leaves me, activity wise, almost paralyzed. Oh, and my tinnitus is worse than it has been for years.
So I sincerely hope that the wound heals soon. As you can see from the picture, walking is no option, the wound is over 1,5 cms large.
Oh, and if you know of any neurologist who might be knowledgeable about this kind of problems (see “Chemo brain. Recognition?“), please contact me in the comment field.